Collecting race-based data during pandemic may fuel dangerous prejudices
June 22, 2020
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Brian Sinclair wheeled himself into a Winnipeg emergency room in September 2008 seeking assistance with his catheter bag. He had a bladder infection, but instead of receiving treatment, remained in the waiting room for 34 hours until his body 鈥 now lifeless 鈥 finally received medical attention.
Sinclair was an Indigenous man who hospital staff believed was there 鈥,鈥 and was simply 鈥.鈥 He was arguably triaged within what scholars of Indigenous histories Mary Jane Logan McCallum and Adele Perry call .
Sinclair鈥檚 case shows how can influence patient care with fatal consequences. More broadly, this adds to trends of , where negative circumstances that affected population groups in the past continue to affect the same groups today.
Is there a risk that the COVID-19 pandemic will fuel such trends in Canada, especially against the backdrop of the country鈥檚 racialized past? As a sociologist, my answer to this question is yes.
As a researcher affiliated with the , I am also concerned with how racially sorted patients are surveilled, often with negative consequences. Therefore, as a privacy and ethics officer evaluating health data for Ontario鈥檚 , I caution the Ministry of Health and its partners against the use of race- and ethnicity-based health data in dealing with COVID-19.
Collecting race data for good medicine?
Canada鈥檚 attention to race during the first 100 years of immigration policy shaped aspirations of a settler colonial 鈥.鈥 Unsurprisingly, historical racial inequalities shape Canadian experiences in health care.
Dr. Kwame McKenzie of Toronto鈥檚 believes that And many additional doctors and scholars believe that .
However, when race data is collected to understand the social determinants of health, it could inadvertently . This is an essentialist position that necessarily ties the racial attributes and behaviours of one person to another.
Further, when race data is used in these circumstances, it creates more scope to arrive at racist responses to a pandemic than it does to address social vulnerabilities like .
Linking race and health
Alberta鈥檚 Chief Medical Officer of Health, Dr. Deena Hinshaw, . However, Hinshaw has not yet committed to collecting such data. Initially, her Ontario counterpart, Dr. David Williams, said the province would focus on age and chronic illness 鈥渞egardless of race, ethnic or other backgrounds.鈥 Ontario now says during the pandemic.
Williams鈥 revised position certainly eases tensions with a coalition of Black health leaders that has called for attention to race.
Endorsed by 192 organizations and 1,612 individuals, the coalition wrote an to Ontario Premier Doug Ford and other provincial officials. It argues for 鈥渢he collection and use of socio-demographic and race-based data in health and social services 鈥 as it relates to COVID-19.鈥
But the use of race data may be problematic because links between health conditions and race have been connected to discriminatory outcomes in the past.
Race-based medical practice
Diseases like Tay-Sachs and sickle cell anemia , even though these associations with races in terms of who is deemed high risk. Moreover, racializing these diseases reinforced discriminatory notions of race that were tied to other policies of racial oppression, such as .
Because , many medical doctors turn to race as , instead of examining an individual鈥檚 symptoms, individual patient history or family history.
Racial categories are therefore deemed scientific, despite their .
Racializing COVID-19
If race-based data collection is to be attached to COVID-19 in Ontario, then attention should be given to what happens when medical conditions are associated with one鈥檚 race.
What happens when a disease is racialized? One example of the racializing of COVID-19 are the many ignited by .
Another example comes from China where a McDonald鈥檚 franchise in Guangzhou in April reading, 鈥淲e鈥檝e been informed that from now on Black people are not allowed to enter the restaurant鈥 because of 鈥渞umours鈥 that coronavirus was spreading among African people.
So, it did happen: The reports in China has apologized after a branch in the industrial city of Guangzhou barred black people from entering.
鈥 africasacountry (@africasacountry)
If surveillance is the so that people can be 鈥溾 and potentially treated differently, then the systematic collection of race data is also a form of surveillance.
When rumours like those in the McDonald鈥檚 example are connected to reports generated through (like the U.S. Centers for Disease Control and Prevention), then the racial dimensions of the virus can further fuel xenophobia.
Therefore, a call for .
Measuring race, fuelling racism
Health scholars have raised concerns about 鈥.鈥
In the open letter from the coalition of Black health leaders to Ontario鈥檚 political leaders, a case is made for collecting race data because, 鈥.鈥 But can race be measured?
What determines the boundary between one race and another, especially if self-identification means that race is a subjective term, not a medically objective one?
Prejudicial inferences from race-based data are of significant concern. It is these prejudices, contributing to historical trends of racism, that we are reminded of when recalling Brian Sinclair鈥檚 tragic death in a Winnipeg ER.
It is these prejudices that are fuelled by collecting race data for health care, especially when coupled with public hysteria during a pandemic.
, Adjunct Assistant Professor (Sociology), and Associated Faculty member (Surveillance Studies Centre), .
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